A lifetime of pain A 12-year-old boy is battling severe sickle cell disease after a year of misdiagnosis stole his precious time. Health Just now
Between the two of them lies the whole argument for a health system that catches sickle cell disease at birth, before a single wrong diagnosis of pneumonia can cost a child a year, or an organ, or the years they might otherwise have had.
They can begin hydroxyurea, the disease-modifying drug that reduces crisis frequency and long-term organ damage, and which, according to Dr Uyoga, has also been shown to reduce the risk of stroke, one of sickle cell disease's most devastating complications.
Globally, an estimated 515,000 babies are born with sickle cell disease every year.
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